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Discussions (53)
Comments (712)
Comment
Good morning, @jps01 I think we’re getting to be old friends here…I’m always popping up with...
https://connect.mayoclinic.org/comment/929726/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Sep 14, 2023
Comment
Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...
https://connect.mayoclinic.org/comment/146305/
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Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Feb 8, 2020
Comment
Hi & thank you for the links. It really helps to stay informed & read &...
https://connect.mayoclinic.org/comment/1229968/
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Discussion:
Low hemoglobin and enlarged liver and spleen
Support Group:
Blood Cancers & Disorders
Posted: Feb 5 10:14am
Comment
deb13, Lori and all This page has been quiet!! I need to say once again that...
https://connect.mayoclinic.org/comment/1165813/
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Discussion:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Oct 31, 2024
Comment
Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...
https://connect.mayoclinic.org/comment/1185598/
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Discussion:
Newly diagnosed MDS-IB2 and vidaza
Support Group:
Blood Cancers & Disorders
Posted: Dec 6, 2024
Comment
I have been in hydroxy for 6 weeks now. I take 2(500mg) a day. I was...
https://connect.mayoclinic.org/comment/1119123/
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Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Aug 6, 2024
Comment
Hi Howard, I’d been wondering how you’re doing on the chemo. You asked me in another...
https://connect.mayoclinic.org/comment/879927/
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Discussion:
Myelodysplastic syndromes (MDS): When do you need to start treatment?
Support Group:
Blood Cancers & Disorders
Posted: Jun 16, 2023
Comment
rayj- I had a TP53 gene mutation. It is amazing to learn about new drug therapies....
https://connect.mayoclinic.org/comment/1087389/
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Discussion:
Husband with AML facing a stem cell transplant
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jun 15, 2024
Comment
Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with...
https://connect.mayoclinic.org/comment/1072120/
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Discussion:
Why are there no discussions about cancer of the blood?
Support Group:
Blood Cancers & Disorders
Posted: May 21, 2024
Comment
Brenda, indeed I have (had) a very full life, and continue to be busy. But (there...
https://connect.mayoclinic.org/comment/963920/
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Discussion:
Looking for experiences with the progression of MDS
Support Group:
Blood Cancers & Disorders
Posted: Nov 13, 2023
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