Blood Cancers & Disorders Support Group

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Comment

I’m on my third year with PV. Took HU for six months before developing an allergy...

https://connect.mayoclinic.org/comment/828409/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Comment

I have been on Jakafi for several years now. My hemoglobin dropped when I started the...

https://connect.mayoclinic.org/comment/1271441/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2025

Comment

Jakafi stopped the itching for me as well as many other PV side effects.

https://connect.mayoclinic.org/comment/943008/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Comment

Hi that's great if the Jakafi med is working for combined with the Hair supplement. I...

https://connect.mayoclinic.org/comment/889942/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I have been on Jakafi since late August. I had GVHD after a bone marrow transplant...

https://connect.mayoclinic.org/comment/775797/

Discussion: Sprycel/Jakafi/living with CML

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2022

Comment

I've been on Jakafi for about a year. It has kept my platelets under control but...

https://connect.mayoclinic.org/comment/1300838/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Comment

There are also anagrelide, Pegasys, and Jakafi. Anagrelide has been around a long time, but causes...

https://connect.mayoclinic.org/comment/1119915/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Comment

I also read that Jakafi increases chances of blood clots in PV patients.

https://connect.mayoclinic.org/comment/751786/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2022

Comment

Hi, @colran, Essential Thrombocythemia is a condition where your body is producing too many platelets. It’s...

https://connect.mayoclinic.org/comment/1523842/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:57am

Comment

I was on Jakafi for GVHD and I had no side effects I can remember, and...

https://connect.mayoclinic.org/comment/913727/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023