Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

342 total results

Comment

@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...

https://connect.mayoclinic.org/comment/1041672/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

I hope they can treat the amyloidosis for you, and you can improve 🌺

https://connect.mayoclinic.org/comment/963531/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...

https://connect.mayoclinic.org/comment/807258/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Comment

Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis

https://connect.mayoclinic.org/comment/754613/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Comment

Ww, @cousinvinney. You must be processing quite a bit of information now that you received a...

https://connect.mayoclinic.org/comment/1533184/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:15pm

Comment

Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...

https://connect.mayoclinic.org/comment/732756/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

Comment

My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...

https://connect.mayoclinic.org/comment/1119946/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Comment

@loribmt Yes- I have Multiple Myeloma and Amyloidosis and they returned now. Next step Mayo.

https://connect.mayoclinic.org/comment/1436425/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Comment

Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to...

https://connect.mayoclinic.org/comment/1265776/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Comment

Hi @paotired. Just checking in with you to see if you’ve started your treatments for the...

https://connect.mayoclinic.org/comment/1511879/

Discussion: Al amyloidosis treatment after 6 years of remission

Support Group: Blood Cancers & Disorders

Posted: Feb 22 9:13am