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282 total results

Comment

Yes it is more specific for cardiac Amyloidosis always varying opinions for testing protocols Sent from...

https://connect.mayoclinic.org/comment/754874/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

Comment

Thank you for recommending a consult with a a Mayo doctor specializing in both WM and...

https://connect.mayoclinic.org/comment/687250/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Comment

Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how...

https://connect.mayoclinic.org/comment/104724/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2018

Comment

Also for those with cardiac amyloidosis and AFib green tea may not be recommended due to...

https://connect.mayoclinic.org/comment/678281/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2022

Comment

Hi @colleenyoung , The links dont seem to work any longer. Are there updated ones we...

https://connect.mayoclinic.org/comment/732533/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

Comment

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Comment

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19 12:31pm

Comment

I have some info with regards to Macular Amyloidosis. I too have this condition, and am...

https://connect.mayoclinic.org/comment/880750/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

Comment

My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...

https://connect.mayoclinic.org/comment/898857/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022