Blood Cancers & Disorders Support Group

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Comment

Hi @girlmidget. Welcome to Connect! You’ve come to the right place to be able to speak...

https://connect.mayoclinic.org/comment/1264801/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 10:35am

Comment

I’m happy to hear you’re being seen by an AML specialist from Mayo-Rochester. It’s my home...

https://connect.mayoclinic.org/comment/1030654/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Comment

I can get no Vaccines of any kind at this time. But will not ever get...

https://connect.mayoclinic.org/comment/808310/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Comment

Wow how brave of your husband and such incredible strength you have to be where you...

https://connect.mayoclinic.org/comment/926044/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Comment

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020

Comment

Hi Hollie, thanks. That did make things clearer. I was getting the doctors mixed up.😉 Hm....

https://connect.mayoclinic.org/comment/1172518/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Comment

I thought I would share my experience which I am grateful that my only symptoms at...

https://connect.mayoclinic.org/comment/756572/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Comment

Hi - One thing I learned early on is that there is no "normal" for MDS....

https://connect.mayoclinic.org/comment/924698/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

Comment

This is so encouraging for me. I have been diagnosed with CMML however they are going...

https://connect.mayoclinic.org/comment/1096471/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024