Blood Cancers & Disorders Support Group

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419 total results

Comment

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

Comment

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely...

https://connect.mayoclinic.org/comment/905705/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

Comment

I guess it depends on the hematologist/oncologist’s experience. I was never offered the option - I...

https://connect.mayoclinic.org/comment/877816/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Comment

I was diagnosed with myelofibrosis a year ago, along with B-cell lymphoma. I’m taking Hydroxyurea with...

https://connect.mayoclinic.org/comment/1264930/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 12:31pm

Comment

Hello - I am contemplating going on momelotinib or a clinical trial that would address my...

https://connect.mayoclinic.org/comment/1376267/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 21 7:36pm

Comment

@samlupowitz, if you would like to seek a second opinion from Mayo experts in myelofibrosis and...

https://connect.mayoclinic.org/comment/808434/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Welcome to Connect @rhollis I think a good place to begin this morning is with a...

https://connect.mayoclinic.org/comment/1201587/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:46am

Comment

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5 5:06pm

Comment

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Comment

I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...

https://connect.mayoclinic.org/comment/1171967/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024