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Public Support Group 356 total results
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Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...
https://connect.mayoclinic.org/comment/1203402/
Comment
Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV...
Discussion
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Discussion
Needing help understanding ET and how it affects my life
I’m 28 and have not been formally diagnosed with Essential Thrombocythemia, but my platelet counts have been consistently high since I was at least 16...
Discussion
Soft-Tissue Masses Not Diagnosed
We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...
Discussion
CALR exon 9 mutation w/translocation of chromosomes 10 &13
I'm 57 (58 in February 2026) and was diagnosed with essential thrombocythemia about six months ago, after genetic testing it turns out I have a...
Discussion
Getting rid of oral thrush: What works?
My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...
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