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Public Support Group 372 total results
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@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in...
https://connect.mayoclinic.org/comment/1050842/
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I was confused by this also. My hematologist told me I have Essential Thrombocytosis but my...
Discussion
I’ve had essential thrombocythaemia for 23 years now,and thyroid issue
I’ve had this disease for 23 years now,have taken Anagrelide,hydroxides,but now I’m injecting with Peg-interferon 90mcg weekly and it’s keeping my platelets stable,over the last...
Discussion
Soft-Tissue Masses Not Diagnosed
We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...
Discussion
CALR exon 9 mutation w/translocation of chromosomes 10 &13
I'm 57 (58 in February 2026) and was diagnosed with essential thrombocythemia about six months ago, after genetic testing it turns out I have a...
Discussion
Getting rid of oral thrush: What works?
My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...
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