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282 total results
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Discussions (31)
Comments (251)
Comment
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
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Discussion:
Diagnosed with AL Amyloidosis. What can I expect?
Support Group:
Blood Cancers & Disorders
Posted: Feb 21, 2019
Comment
@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...
https://connect.mayoclinic.org/comment/807258/
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Discussion:
Amyloidisis of the mouth and myeloma
Support Group:
Blood Cancers & Disorders
Posted: Feb 6, 2023
Comment
Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis
https://connect.mayoclinic.org/comment/754613/
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Discussion:
What’s the science on diet and MGUS/SMM?
Support Group:
Blood Cancers & Disorders
Posted: Sep 27, 2022
Comment
Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate
https://connect.mayoclinic.org/comment/754346/
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Discussion:
What’s the science on diet and MGUS/SMM?
Support Group:
Blood Cancers & Disorders
Posted: Sep 27, 2022
Comment
@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...
https://connect.mayoclinic.org/comment/1041672/
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Discussion:
Positive test results for amyloids
Support Group:
Blood Cancers & Disorders
Posted: Mar 28 12:09pm
Comment
Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...
https://connect.mayoclinic.org/comment/732756/
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Discussion:
Diagnosed with AL Amyloidosis. What can I expect?
Support Group:
Blood Cancers & Disorders
Posted: Jul 31, 2022
Comment
I hope they can treat the amyloidosis for you, and you can improve 🌺
https://connect.mayoclinic.org/comment/963531/
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Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Nov 12, 2023
Comment
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
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Discussion:
Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group:
Blood Cancers & Disorders
Posted: Aug 8 9:09am
Comment
Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this...
https://connect.mayoclinic.org/comment/1042022/
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Discussion:
Abnormal bloodwork questions
Support Group:
Blood Cancers & Disorders
Posted: Mar 29 8:15am
Comment
You're welcome. I hope you find some answers. I have AL Amyloidosis, there is another type...
https://connect.mayoclinic.org/comment/1120802/
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Discussion:
Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9 4:35pm
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