Blood Cancers & Disorders Support Group

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Comment

I am sorry that you are not doing well . I have myelofibtosis and still on...

https://connect.mayoclinic.org/comment/1251826/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

Has anybody had any eye issues with?myelofibrosi?

https://connect.mayoclinic.org/comment/1164296/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

Comment

Hi @wellness3070, Unfortunately, research shows that muscle weakness can be one of the side effects; however,...

https://connect.mayoclinic.org/comment/132605/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Comment

I was recently diagnosed with Mylofibrosis also. My hematologist has recommended that I have a Stem...

https://connect.mayoclinic.org/comment/1103286/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...

https://connect.mayoclinic.org/comment/1082842/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Comment

I worked for 40 + years in Cytogenetics. In our field chromosomes are listed as “normal”...

https://connect.mayoclinic.org/comment/1074264/

Discussion: Chromosomes positive

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Comment

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were...

https://connect.mayoclinic.org/comment/795740/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Myleofibrosis turned into LeukemiaAny survivors ? Share your story with me

https://connect.mayoclinic.org/comment/1430263/

Discussion: When to start worrying about blast percentage changes?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Comment

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025