Blood Cancers & Disorders Support Group

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Comment

ITP is an autoimmune disease, also called idiopathic thrombocytopenia, that attacks the body’s platelets, so you...

https://connect.mayoclinic.org/comment/194331/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

Comment

@bhbooze I was a platelet donor for 25 years, so i knew my blood numbers. When...

https://connect.mayoclinic.org/comment/1444401/

Discussion: 79 year old male with MDS: Worried about increasng fatigue

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

Comment

Have you or anyone you know dealing with MDS ever enjoyed a remission? Or even a...

https://connect.mayoclinic.org/comment/1382705/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Comment

Jeff - lustpatercept is one of our options. I did not know del 5q could not...

https://connect.mayoclinic.org/comment/1361236/

Discussion: MDS with sideroblasts and trying Lospatercept or Elritercept?

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2025

Comment

The Government has acknowledged that the drinking water at Camp Lejeune was contaminated from 1954 to...

https://connect.mayoclinic.org/comment/194350/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Comment

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Comment

Hi @jschellhaas. Honestly, I don’t think anyone is ever ready for chemo. I’ve been there myself...

https://connect.mayoclinic.org/comment/1198337/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Comment

We certainly are on a journey, and I have realized how little I know about what...

https://connect.mayoclinic.org/comment/1151321/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Comment

Hi @smetzing I’m wondering how your husband is doing. Was there any mention of having another...

https://connect.mayoclinic.org/comment/940148/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2023

Comment

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that...

https://connect.mayoclinic.org/comment/1142396/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024