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816 total results
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Discussions (57)
Comments (759)
Comment
I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These...
https://connect.mayoclinic.org/comment/798411/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Jan 18, 2023
Comment
I'm sorry to hear that you haven't shared this diagnosis with your children. I think perhaps...
https://connect.mayoclinic.org/comment/755895/
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Discussion:
Low Platelets with Myelodysplastic Syndrome (MDS)
Support Group:
Blood Cancers & Disorders
Posted: Oct 1, 2022
Comment
I also was recently diagnosed with aplastic anemia, but was told that it was likely age...
https://connect.mayoclinic.org/comment/848839/
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Discussion:
Aplastic Anemia and vaccine influences
Support Group:
Blood Cancers & Disorders
Posted: Apr 24, 2023
Comment
Also looking for Rytelo information. It’s so new we may not get much for experience on...
https://connect.mayoclinic.org/comment/1199195/
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Discussion:
imetelstat/Rytelo MDS treatment anyone?
Support Group:
Blood Cancers & Disorders
Posted: Dec 29, 2024
Comment
Did they do a molecular panel to determine which genes have mutated? The reason I ask...
https://connect.mayoclinic.org/comment/194333/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 10, 2019
Comment
I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...
https://connect.mayoclinic.org/comment/194316/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: May 9, 2019
Comment
I was diagnosed with MDS IB2 March 2024 age 76. I was told by my hematologist...
https://connect.mayoclinic.org/comment/1265906/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Mar 24 2:29pm
Comment
Brenda, I moved your recent post to your existing discussion about living with MDS (myelodysplastic syndromes)....
https://connect.mayoclinic.org/comment/953178/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Oct 24, 2023
Comment
Hi @deemcrae Welcome to Connect. You’re doing everything just right and in the perfect support group...
https://connect.mayoclinic.org/comment/829704/
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Discussion:
MDS treatment options other than bone marrow transplant
Support Group:
Blood Cancers & Disorders
Posted: Mar 21, 2023
Comment
Hi @nbadry, I'm tagging fellow members like @jrsav @gingerw @tristram @coynelane @darlaburley @janetlen @5qdeletion @marco88, who...
https://connect.mayoclinic.org/comment/1159672/
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Discussion:
What are your experiences with lenalidomide (Revlimid) for MDS?
Support Group:
Blood Cancers & Disorders
Posted: Oct 19, 2024
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