Blood Cancers & Disorders Support Group

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Comment

I am so sorry to hear about this change in your wife’s health. Are you seeing...

https://connect.mayoclinic.org/comment/1519998/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 6:52am

Comment

Hi @lexsjx I’m 63 and just started hydrea (HU) 2 weeks ago. I’ve had elevated platelets...

https://connect.mayoclinic.org/comment/1532160/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 21 1:23pm

Comment

Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...

https://connect.mayoclinic.org/comment/1250438/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

Comment

Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...

https://connect.mayoclinic.org/comment/1131840/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

Comment

What do you mean they can't do much? That doesn't sound good at all! You need...

https://connect.mayoclinic.org/comment/1102499/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...

https://connect.mayoclinic.org/comment/802874/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Comment

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...

https://connect.mayoclinic.org/comment/1487573/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 5:24pm