Blood Cancers & Disorders Support Group

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Comment

I have MDS and am recently been dealing with low platelets I have been in search...

https://connect.mayoclinic.org/comment/1268659/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Comment

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

Comment

My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders...

https://connect.mayoclinic.org/comment/1062004/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Comment

Hi Sharyn, with your MDS, your immune system is weakened. So, having an abscess and a...

https://connect.mayoclinic.org/comment/756028/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Comment

Three years ago, my husband at age 71 was diagnosed with AML/MDS. He has had 25...

https://connect.mayoclinic.org/comment/1517311/

Discussion: Anyone with AML? If so please let me know anything helpful.

Support Group: Blood Cancers & Disorders

Posted: Mar 1 3:22pm

Comment

Hi @lindak123, Quite frankly, if that’s the reaction from your doctor, I’d be looking for a...

https://connect.mayoclinic.org/comment/1527389/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:41am

Comment

As far as I know, ET with a positive JAK2 mutation normally suggests you have a...

https://connect.mayoclinic.org/comment/284525/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Comment

Excellent advice - I needed to hear this today! I have officially told my nurse self...

https://connect.mayoclinic.org/comment/1368331/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 11, 2025

Comment

Hi Lori and thank you for your response. I was diagnosed with MDS about 3 months...

https://connect.mayoclinic.org/comment/1257092/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Comment

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025