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774 total results
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Discussions (53)
Comments (721)
Comment
Hi there - I am 70 years young & just diagnosed with MDS IB2. My hematologist...
https://connect.mayoclinic.org/comment/1266510/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Mar 25 11:47am
Comment
Thank you everyone. I have CCUS or MDS. I am not entirely sure, but we are...
https://connect.mayoclinic.org/comment/1086927/
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Discussion:
Why is a new bone marrow biopsy necessary?
Support Group:
Blood Cancers & Disorders
Posted: Jun 14, 2024
Comment
I was diagnosed in July with MDS, but low Neutrophils counts and high blood cells volume...
https://connect.mayoclinic.org/comment/996239/
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Discussion:
Long awaited Drug for myelofibrosis (MF) has been released
Support Group:
Blood Cancers & Disorders
Posted: Jan 12, 2024
Comment
I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These...
https://connect.mayoclinic.org/comment/798411/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Jan 18, 2023
Comment
I'm sorry to hear that you haven't shared this diagnosis with your children. I think perhaps...
https://connect.mayoclinic.org/comment/755895/
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Discussion:
Low Platelets with Myelodysplastic Syndrome (MDS)
Support Group:
Blood Cancers & Disorders
Posted: Oct 1, 2022
Comment
I also was recently diagnosed with aplastic anemia, but was told that it was likely age...
https://connect.mayoclinic.org/comment/848839/
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Discussion:
Aplastic Anemia and vaccine influences
Support Group:
Blood Cancers & Disorders
Posted: Apr 24, 2023
Comment
Did they do a molecular panel to determine which genes have mutated? The reason I ask...
https://connect.mayoclinic.org/comment/194333/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 10, 2019
Comment
I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...
https://connect.mayoclinic.org/comment/194316/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: May 9, 2019
Comment
Also looking for Rytelo information. It’s so new we may not get much for experience on...
https://connect.mayoclinic.org/comment/1199195/
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Discussion:
imetelstat/Rytelo MDS treatment anyone?
Support Group:
Blood Cancers & Disorders
Posted: Dec 29, 2024
Comment
bevancarney1054- What a story. I live in California with some of the best cancer hospitals within...
https://connect.mayoclinic.org/comment/1266089/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Mar 24 7:59pm
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