Blood Cancers & Disorders Support Group

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Comment

I am almost 72, with JAK2 diagnosed a year ago, no history of thrombosis. My hematologist/oncologist...

https://connect.mayoclinic.org/comment/1026479/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Comment

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

I’m a 56 yr old female and was just diagnosed with PV in January Jak2 positive....

https://connect.mayoclinic.org/comment/836589/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

Hi @lyd0218 I am 81 and have ET JAK2 mutation, I started taking HU 500 mg...

https://connect.mayoclinic.org/comment/1322691/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 8 6:31am

Comment

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Comment

Did your family doctor do the needle biopsy? I also had a benign goiter and non...

https://connect.mayoclinic.org/comment/878180/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Hi @ettap, this post was years ago but curious how things are going now? If I'm...

https://connect.mayoclinic.org/comment/919567/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

Comment

Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost...

https://connect.mayoclinic.org/comment/794995/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023