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993 total results
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Discussions (65)
Comments (928)
Comment
No travel problems here. We fly extensively every year, even since I was diagnosed, ET w/JAK2....
https://connect.mayoclinic.org/comment/1089517/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 19 6:20am
Comment
Sorry for the delayed response, yes…tested for 25 mutations…I have 8.. including Jak2 and ASXL1 but...
https://connect.mayoclinic.org/comment/656013/
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Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2021
Comment
Hello, dear people....good to meet you.... I'm newly diagnosed PV...and just trying to navigate all this....
https://connect.mayoclinic.org/comment/858478/
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Discussion:
Polycythemia vera (PV): Does altitude matter?
Support Group:
Blood Cancers & Disorders
Posted: May 12, 2023
Comment
I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...
https://connect.mayoclinic.org/comment/1192993/
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Discussion:
What might this be? polycythemia vera, PCOS, lupus, something else?
Support Group:
Blood Cancers & Disorders
Posted: 4 hours ago
Comment
I met with new oncologist/hema this week. I will be getting a bone marrow biopsy, as...
https://connect.mayoclinic.org/comment/651545/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Nov 5, 2021
Comment
HU is short for hydroxyurea or Hydrea. It is in pill form and suppresses blood cells,...
https://connect.mayoclinic.org/comment/252000/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Feb 27, 2019
Comment
The WHO has designated ET with Jak2 is a chronic cancer. And HU is considered chemo,...
https://connect.mayoclinic.org/comment/901372/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jul 24, 2023
Comment
In the same boat. JAK2 negative. Now what? My stress and worry are getting the best...
https://connect.mayoclinic.org/comment/886799/
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Discussion:
JAK2 negative with high platelets
Support Group:
Heart & Blood Health
Posted: Jun 28, 2023
Comment
When I first saw my heme doc little over a year ago, he said not to...
https://connect.mayoclinic.org/comment/1039829/
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Discussion:
Im 64 and my blood platelets have been in the low 530-550 range for yr
Support Group:
Blood Cancers & Disorders
Posted: Mar 25 8:07am
Comment
I have read the risks for AML with ET. It is low, but can happen. One...
https://connect.mayoclinic.org/comment/1022379/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 25 1:06pm
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