Blood Cancers & Disorders Support Group

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Comment

Does have tested positive for JAK2 mutation mean you have a MPN? Very confused. I was...

https://connect.mayoclinic.org/comment/763106/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

Comment

Hello, I didn’t start on HD until mine hit 842. After 3 months I’m down to...

https://connect.mayoclinic.org/comment/1026054/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

I have seen two hematologists, both very good with evaluating and treating the ET, but have...

https://connect.mayoclinic.org/comment/831683/

Discussion: Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

Comment

I can understand the 2 words cancer and chemo are extremely scary. But with ET Jak2,...

https://connect.mayoclinic.org/comment/1091505/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

For what it’s worth, some docs call this a cancer while others say it’s a neoplasm....

https://connect.mayoclinic.org/comment/1061678/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Comment

I have been taking Eliquis for AFib for several years. This was ordered by my cardiologist....

https://connect.mayoclinic.org/comment/811705/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Comment

Hi donlynn, I moved your questions to this existing discussion on the same topic of JAK2...

https://connect.mayoclinic.org/comment/599836/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Comment

Hi Barbie 75....I also have jak2 and take 500mg Hyderabad six days a week. I still...

https://connect.mayoclinic.org/comment/194338/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2019

Comment

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

Comment

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was...

https://connect.mayoclinic.org/comment/840900/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023