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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...
https://connect.mayoclinic.org/comment/799775/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Jan 21, 2023
Comment
Yes, some docs start patients on huge doses of HU if their platelets are over 1,000...
https://connect.mayoclinic.org/comment/1377250/
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Discussion:
Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
Support Group:
Blood Cancers & Disorders
Posted: Aug 23 9:10am
Comment
Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....
https://connect.mayoclinic.org/comment/1125122/
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Discussion:
How much of a risk factor is high white blood cell count with pv?
Support Group:
Blood Cancers & Disorders
Posted: Aug 16, 2024
Comment
A year and a half ago, I presented a hemoglobin of 7g with no evidence of...
https://connect.mayoclinic.org/comment/915865/
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Discussion:
Iron deficiency anemia without an apparent cause
Support Group:
Blood Cancers & Disorders
Posted: Aug 20, 2023
Comment
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
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Discussion:
PV and fatigue
Support Group:
Blood Cancers & Disorders
Posted: Jun 1, 2023
Comment
When I first started with ET JAK2 in 2022 I was given 500 mg HU daily....
https://connect.mayoclinic.org/comment/1180620/
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Discussion:
Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?
Support Group:
Blood Cancers & Disorders
Posted: Nov 27, 2024
Comment
I was diagnosed in Jan 2023 with PV I was 56 and no health issues or...
https://connect.mayoclinic.org/comment/1073615/
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Discussion:
Polycythemia Vera or Essential Thrombocythemia ?
Support Group:
Blood Cancers & Disorders
Posted: May 24, 2024
Comment
now into my 4th year of HU for ET Jak2. My platelets rose for 3 years...
https://connect.mayoclinic.org/comment/1044045/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Apr 2, 2024
Comment
Good Morning. I have the Jak2 mutation and diagnosed with ET. I have been on Hydroxyuria...
https://connect.mayoclinic.org/comment/856246/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: May 8, 2023
Comment
I was diagnosed just about a year ago with PV. Been on Hydrea since May. My...
https://connect.mayoclinic.org/comment/842778/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Apr 13, 2023
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