Blood Cancers & Disorders Support Group

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Comment

Good morning! Having never heard of Ozone Therapy and having PV/JAK2 and taking 1000 mg of...

https://connect.mayoclinic.org/comment/1353881/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

Comment

@loribmt Yes, that makes total sense. I'm interested in exploring what that familial lineage is, which...

https://connect.mayoclinic.org/comment/1272673/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Comment

Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t...

https://connect.mayoclinic.org/comment/1100735/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Comment

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Hi Steve, Welcome to this wonderful site. I have ET JAK2 and have found the site...

https://connect.mayoclinic.org/comment/800839/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

This forum has truly been a game changer for me in my walk with ET JAK2+!...

https://connect.mayoclinic.org/comment/1235157/

Discussion: GI issues after 7 months on Hydroxyurea - What’s next?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

Comment

Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...

https://connect.mayoclinic.org/comment/1225257/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

Comment

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

Comment

@1995victoria, I added your question to both the Blood Cancer & Disorders support group as well...

https://connect.mayoclinic.org/comment/1417068/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 16, 2025