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Discussions (76)
Comments (1,106)
Comment
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
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Discussion:
PV and fatigue
Support Group:
Blood Cancers & Disorders
Posted: Jun 1, 2023
Comment
Remember to breathe and stay connected to others on this site more than searching the internet...
https://connect.mayoclinic.org/comment/1162735/
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Discussion:
JAK2 Mutation and enlarged spleen: What might it mean?
Support Group:
Blood Cancers & Disorders
Posted: Oct 25, 2024
Comment
A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...
https://connect.mayoclinic.org/comment/796537/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Jan 14, 2023
Comment
@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...
https://connect.mayoclinic.org/comment/231785/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 7, 2019
Comment
When I first started with ET JAK2 in 2022 I was given 500 mg HU daily....
https://connect.mayoclinic.org/comment/1180620/
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Discussion:
Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?
Support Group:
Blood Cancers & Disorders
Posted: Nov 27, 2024
Comment
I was diagnosed in Jan 2023 with PV I was 56 and no health issues or...
https://connect.mayoclinic.org/comment/1073615/
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Discussion:
Polycythemia Vera or Essential Thrombocythemia ?
Support Group:
Blood Cancers & Disorders
Posted: May 24, 2024
Comment
now into my 4th year of HU for ET Jak2. My platelets rose for 3 years...
https://connect.mayoclinic.org/comment/1044045/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Apr 2, 2024
Comment
Good Morning. I have the Jak2 mutation and diagnosed with ET. I have been on Hydroxyuria...
https://connect.mayoclinic.org/comment/856246/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: May 8, 2023
Comment
I was diagnosed just about a year ago with PV. Been on Hydrea since May. My...
https://connect.mayoclinic.org/comment/842778/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Apr 13, 2023
Comment
Sorry it took your expertise to get you to the right specialist for diagnosis. I have...
https://connect.mayoclinic.org/comment/1195072/
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Discussion:
My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Support Group:
Blood Cancers & Disorders
Posted: Dec 22, 2024
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