Blood Cancers & Disorders Support Group

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Comment

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

Comment

Welcome @zinsam, I moved your message to this existing discussion about thrombocythemia so you can connect...

https://connect.mayoclinic.org/comment/893506/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

Comment

I have had ET, JAK2 positive, for 12 years. Received no treatment until 20 months ago...

https://connect.mayoclinic.org/comment/997147/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Comment

Good morning! Having never heard of Ozone Therapy and having PV/JAK2 and taking 1000 mg of...

https://connect.mayoclinic.org/comment/1353881/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

Comment

@loribmt Yes, that makes total sense. I'm interested in exploring what that familial lineage is, which...

https://connect.mayoclinic.org/comment/1272673/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Comment

Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t...

https://connect.mayoclinic.org/comment/1100735/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Comment

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023