Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,182 total results

Comment

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

really, no one wants plts with JAK2..and they rebuild so fast, it doesn't really help to...

https://connect.mayoclinic.org/comment/1047269/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Thanks for the question. If the diagnosis is clear without punching around in the marrow, the...

https://connect.mayoclinic.org/comment/593688/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2021

Comment

Hi, I was do with ET 3 years ago, + JAK2 via BM bx. I am...

https://connect.mayoclinic.org/comment/855293/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

Comment

MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about...

https://connect.mayoclinic.org/comment/328599/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

So glad to hear you are not having symptoms and it has not morphed into leukemia....

https://connect.mayoclinic.org/comment/203949/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Comment

Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....

https://connect.mayoclinic.org/comment/1125122/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2024

Comment

A year and a half ago, I presented a hemoglobin of 7g with no evidence of...

https://connect.mayoclinic.org/comment/915865/

Discussion: Iron deficiency anemia without an apparent cause

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023