Blood Cancers & Disorders Support Group

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Comment

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Comment

Patty, when my platelet count rose slowly & steadily over several years I was very worried...

https://connect.mayoclinic.org/comment/1063989/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 7 10:15pm

Comment

Hello and thank you very much for responding and for all of the useful articles and...

https://connect.mayoclinic.org/comment/820592/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Comment

@gjb1 - My EPO is high as well. In my case the high EPO makes sense,...

https://connect.mayoclinic.org/comment/231784/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2019

Comment

Hi Justin. Thank you so much! And thanks to the hematologist/oncologist for the information. This was...

https://connect.mayoclinic.org/comment/284538/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2020

Comment

Hi @taisaint, All of this information can be found in National Institute of Health, Pub Med...

https://connect.mayoclinic.org/comment/1023272/

Discussion: Contolling Hydroxyurea fatigue by time of day you take the medication

Support Group: Blood Cancers & Disorders

Posted: Feb 26 5:27pm

Comment

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone...

https://connect.mayoclinic.org/comment/774273/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Comment

My functional medicine doc has me taking 10,000 IU Vit D daily to keep my levels...

https://connect.mayoclinic.org/comment/845564/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and...

https://connect.mayoclinic.org/comment/930012/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Comment

Hi Lynn. I was having tingling and numbness in my lips. It felt weird when I...

https://connect.mayoclinic.org/comment/839738/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023