Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,205 total results
All
Discussions (77)
Comments (1,128)
Comment
Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...
https://connect.mayoclinic.org/comment/1215129/
Copy link to clipboard
Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Jan 17 5:44pm
Comment
When I got second shingles shot, my platelet count plummeted, was of concern to Hemo, but...
https://connect.mayoclinic.org/comment/1131106/
Copy link to clipboard
Discussion:
COVID infection is terrible
Support Group:
Blood Cancers & Disorders
Posted: Aug 26, 2024
Comment
International Prognostic Score for ET Patient age less than 60 (0 points) Older than 60 (1...
https://connect.mayoclinic.org/comment/782535/
Copy link to clipboard
Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Dec 8, 2022
Comment
Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia....
https://connect.mayoclinic.org/comment/820581/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 4, 2023
Comment
I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side...
https://connect.mayoclinic.org/comment/1195446/
Copy link to clipboard
Discussion:
My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Support Group:
Blood Cancers & Disorders
Posted: Dec 22, 2024
Comment
I have been on low dose HU since 2022 for ET JAK2. I am currently taking...
https://connect.mayoclinic.org/comment/1156193/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Oct 13, 2024
Comment
Don't assume your will have side effects from Hydrea. My platelets were 600s for 10 years...
https://connect.mayoclinic.org/comment/846829/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Apr 21, 2023
Comment
Hi I’m 62 male , was diagnosed 3 months ago with ET and JAK2 positive my...
https://connect.mayoclinic.org/comment/828785/
Copy link to clipboard
Discussion:
Hydroxyurea side effects lessen over time?
Support Group:
Blood Cancers & Disorders
Posted: Mar 20, 2023
Comment
Hi, Flynn. I too understand your hesitancy to take the Hydrea. I am 81. I have...
https://connect.mayoclinic.org/comment/773870/
Copy link to clipboard
Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Nov 16, 2022
Comment
Thanks @katgob. The second link article does show a strong connection between anemia and cognitive decline....
https://connect.mayoclinic.org/comment/1202026/
Copy link to clipboard
Discussion:
MDS and cognitive decline
Support Group:
Blood Cancers & Disorders
Posted: Jan 1 8:16pm
First
Previous
...
39
40
41
42
43
44
45
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.