Blood Cancers & Disorders Support Group

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Reply by @missypurtee THANK YOU FOR YOUR LOVE AND CONCERN; 1.Cold Induced urticaria, 2. Cold Anaphylaxis...

https://connect.mayoclinic.org/comment/804071/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

Comment

Dear Tokyolin: I am “flynnconn” and you can check out my specifics in 2 previous posts...

https://connect.mayoclinic.org/comment/882771/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Comment

Hi Betsy, If all goes as planned the anemia you suffer from should be resolved after...

https://connect.mayoclinic.org/comment/1370930/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14, 2025

Comment

Hi cdurbin, I am sorry your BMB was painful. I must have had an experienced nurse...

https://connect.mayoclinic.org/comment/1277147/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

Comment

Hi, I am not sure if I have ET or myelofibrosis as my oncologist/hematologist seems to...

https://connect.mayoclinic.org/comment/1252507/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

Comment

Welcome to Connect, @davi0937 You’re going to be in terrific hands with the hematology dept at...

https://connect.mayoclinic.org/comment/1338707/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2025

Comment

Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day,...

https://connect.mayoclinic.org/comment/1312373/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Also, I might add that a few years ago they thought it may have morphed into...

https://connect.mayoclinic.org/comment/1051289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

Welcome to Connect @kwmotley Reading through your comments it looks like you’re taking a daily aspirin...

https://connect.mayoclinic.org/comment/974721/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

Comment

Hi@nohrt4me, My O/H told me Kaiser does not have MPN specialists so she referred me to...

https://connect.mayoclinic.org/comment/1364165/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025