Blood Cancers & Disorders Support Group

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Comment

Hello I am just starting phlebotomy treatment this week for Hereditary Hemochromatosis (with the HFE gene)....

https://connect.mayoclinic.org/comment/1539904/

Discussion: Non-HFE hemochromatosis (or high iron levels) while having Anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 31 6:33pm

Comment

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Comment

Hello, I've just found out I have the Jak2 mutation and will go for a biopsy...

https://connect.mayoclinic.org/comment/763496/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

PV allele burden (VAF) from quantitative test I have had 2 JAK2 tests, one qualitative, that...

https://connect.mayoclinic.org/comment/1147354/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

Hi, I'm jumping in because I have ET with Jak2 positive. I am on Hydrea 500mg...

https://connect.mayoclinic.org/comment/194273/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Comment

Recently diagnosed with ET with JAK2& in a few months of daily HU my platelet count...

https://connect.mayoclinic.org/comment/1062393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

Oh Debbie I forgot to mention yes, I have tested positive for jAK2 As well as...

https://connect.mayoclinic.org/comment/974136/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

Last time my platelets were just over 700. Now I'm on 1000mg of HU daily. Hopefully...

https://connect.mayoclinic.org/comment/835015/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

Comment

Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite...

https://connect.mayoclinic.org/comment/975739/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Comment

I was diagnosed with JAK2 617F in 2/2020 and began hydroxyurea treatment in 4/2022. I just...

https://connect.mayoclinic.org/comment/670146/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 11, 2022