Blood Cancers & Disorders Support Group

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Comment

Leave it to me to be the rarest case ever! I just knew with all these...

https://connect.mayoclinic.org/comment/908248/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

Comment

hi，carl50！You've been monitoring your CLL for many years now, and it's still not requiring treatment. I'd...

https://connect.mayoclinic.org/comment/1087533/

Discussion: Metformin and its impact on SLL/CLL treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

Comment

I do not know what stage you are in or the nature of your CLL so...

https://connect.mayoclinic.org/comment/1277825/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Comment

Hi @mcconachie Welcome to Connect. I’m sure your mind is racing with questions after having learned...

https://connect.mayoclinic.org/comment/1393714/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

Comment

As a note about what is happening, I am on active "Watch & Wait" protocol and...

https://connect.mayoclinic.org/comment/1317873/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Comment

I'm 80 years young, was diagnosed with CLL in 2004 and was under Dr P. Kaywin...

https://connect.mayoclinic.org/comment/113600/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2017

Comment

It has been a long time since I have added anything to this site mainly because...

https://connect.mayoclinic.org/comment/1013720/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Comment

I've been on Brukinsa since June'24. No side effects so far. I take 2 pills twice...

https://connect.mayoclinic.org/comment/1398199/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Comment

@elainejarrett I am on watch and wait with CLL/SLL; diagnosed Jan 2023. MRI/CT scan show enlarged...

https://connect.mayoclinic.org/comment/825813/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023