Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,450 total results

Comment

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Comment

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

I have been on Pegasys for about 2 years. I have ET Jak2. It brought my...

https://connect.mayoclinic.org/comment/1295459/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2025

Comment

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Hello I am just starting phlebotomy treatment this week for Hereditary Hemochromatosis (with the HFE gene)....

https://connect.mayoclinic.org/comment/1539904/

Discussion: Non-HFE hemochromatosis (or high iron levels) while having Anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 31 6:33pm

Comment

Recently diagnosed with ET with JAK2& in a few months of daily HU my platelet count...

https://connect.mayoclinic.org/comment/1062393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

Oh Debbie I forgot to mention yes, I have tested positive for jAK2 As well as...

https://connect.mayoclinic.org/comment/974136/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

Last time my platelets were just over 700. Now I'm on 1000mg of HU daily. Hopefully...

https://connect.mayoclinic.org/comment/835015/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023