Blood Cancers & Disorders Support Group

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Comment

Hi Robert, Be patient with HU. I am 78 and my hematologist informs me that my...

https://connect.mayoclinic.org/comment/829989/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Comment

Yes I’ve been to my local specialist hematologist and to a hematologist in Houston as well....

https://connect.mayoclinic.org/comment/825898/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

So how was your ET, JAK2 Positive diagnosed? Did your Hematologist or Oncologist do a bone...

https://connect.mayoclinic.org/comment/194361/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

Comment

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087422/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

I am jak2 positive. On a low dose of Asa and Hydroxurea x 3 years. I...

https://connect.mayoclinic.org/comment/957213/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

Comment

Hi all.having been diagnosed with two mutations jak2 and calf ihave been on double dosage of...

https://connect.mayoclinic.org/comment/1288834/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24 10:18am

Comment

I was told before I had the Jak2 positive that if it were Polycythemia secondary that...

https://connect.mayoclinic.org/comment/896033/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

Comment

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Comment

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

Comment

I have ET Jak2 x 18 months now 71 yr old active, vegetarian , on ASA...

https://connect.mayoclinic.org/comment/1191460/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024