Blood Cancers & Disorders Support Group

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Comment

Good Morning. I have the Jak2 mutation and diagnosed with ET. I have been on Hydroxyuria...

https://connect.mayoclinic.org/comment/856246/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

now into my 4th year of HU for ET Jak2. My platelets rose for 3 years...

https://connect.mayoclinic.org/comment/1044045/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 2 8:30am

Comment

Did your family doctor do the needle biopsy? I also had a benign goiter and non...

https://connect.mayoclinic.org/comment/878180/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11 1:47pm

Comment

Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost...

https://connect.mayoclinic.org/comment/794995/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Comment

Good morning huronshores.......I have been taking Hydrea for almost two years and have back and joint...

https://connect.mayoclinic.org/comment/146309/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2020

Comment

I had seven vaccines in 2021 (3 Covid, 2 Shingrix, flu, Tdap booster. I developed psoriasis...

https://connect.mayoclinic.org/comment/815858/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Comment

@ettap I was wondering if you could give me any updates on your case. I have...

https://connect.mayoclinic.org/comment/194271/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Comment

Hi shenriq, I have been taking Hydrea for 20+ years for ET. It keeps my platelet...

https://connect.mayoclinic.org/comment/203931/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

Comment

I have been taking daily 600mgs of HU for 6 yrs (Droxia formulation). When I started...

https://connect.mayoclinic.org/comment/1168197/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 4 6:05pm