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Public Support Group 530 total results
Discussion
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Discussion
A Summary of My Multiple Myeloma
DiagnosisI was diagnosed with Multiple Myeloma on Sept 28, 2022 (age 53). My diagnosis was a result of visiting my general practitioner for the first...
Discussion
Cryoglobulinemia Vasculitis Question
I've been diagnosed with Cryo Vasc..(for short). Along with Sjogrens and Reynauds, both oc which are laying low right now..im on Methotrexate and tapering off...
Discussion
Continuing Care Between Mayo & Local Providers for MM
tl/dr: Mom with multiple myeloma was receiving care at Mayo but recently returned to home state. Local providers are non-experts, and the Mayo support staff...
Comment
Hello, Rosemary 73, I am so sorry for the loss of your son. All kindness to...
https://connect.mayoclinic.org/comment/1062432/
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@wyom1998 Multiple myeloma is abbreviated to mm by many people. I believe what you are asking...
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There is a threshold at which they may decide to start treatment even with smoldering multiple...
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@tristram, how are you doing? I found this article about multiple myeloma and managing bone pain:...
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You mention you started treatment for smoldering myeloma in 2016. Can you share your treatment ?
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I would like to post this link to the international myeloma foundation. They have an amazing...
Discussion
Why doesn't a Mayo Wellness Checkup Include a Blood Test?
Yesterday when I phoned a longtime friend regarding his prostrate cancer, he told me it was diagnosed by the blood test at his Marshfield Health...
Discussion
Multiple Myeloma: why do light chain fluctuate?
I have multiple myeloma and had excellent response to 4 months of lenolidamide/bortezomib/dexamethasone/isatuximab. My kappa light chain numbers at diagnosis in May 2024 were about...
Discussion
Pain with multiple myeloma
Hello my fellow warriors, This is my first time posting on the very informative and helpful site. I've been getting treatment for MM for the...
Discussion
Acyclovir: Have You Been On It and How Long?
When I began my treatments (just two shots) in February of 2022, I was prescribed Acyclivir and Bactrim. Consultation with specialist from Mayo Rochester resulted...
Discussion
Has anyone told they went into remission without treatment?
I was diagnosed with MF in March. I had been seeing an oncologist for 15 months for Multiple Myeoloma, which hasn't been diagnosed yet. In...
Discussion
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
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