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Public Support Group 345 total results
Discussion
What should I expect from Dara-CyBorD treatment for AL Amyloidosis
My doctor is waiting on confirmation from the Mayo Clinic for AL Amyloidosis.
Discussion
Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?
My husband, 55, was recently diagnosed with both AL light chain (lambda) amyloidosis and acquired von Willebrand Syndrome (AvWS). He is finishing cycle 5 of...
Discussion
Articles about New Research in Multiple Myeloma
Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...
Discussion
Chemo side effects
I have MM and Amyloidosis. I’m on Velkade and Revlimid. I am on week 4 of chemo and feel terrible. So weak I can hardly...
Discussion
Ideas for adding weight on? Healthy
I was diagnosed with Al Amyloidosis in 2021. I don't have much of an appetite since then. I would appreciate any ideas to gain about...
Comment
Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years....
https://connect.mayoclinic.org/comment/1340732/
Comment
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
Comment
I was diagnosed with multiiple myeloma and light chain amyloidosis in 2021. Did the 2 year...
Comment
Hello, I came across your request for information on Amyloidosis. If you have not checked on...
Discussion
Amyloidisis of the mouth and myeloma
Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...
Discussion
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Discussion
Possible Al Amylodiois
Hello All, I have several questions and hope this is the right sub forum. I had a bone marrow biopsy done 5 years ago for...
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