Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
1,545 total results
Discussion
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: 10 hours ago
Discussion
Effect of caffeine and alcohol on progression of MGUS
I am newly diagnosed. I don’t drink alcohol and caffeine but do indulge on occasion. Has anyone heard how this might affect MGUS? Thanks!
Last active: Nov 12 6:10pm
Discussion
Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...
Last active: May 14 11:39am
Discussion
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
Last active: Nov 29, 2023
Discussion
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Last active: Apr 7, 2023
Discussion
Anyone have MGUS and being treated for osteoporosis?
Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks
Last active: Jun 20 3:04pm
Discussion
Question to ask about MGUS Diagnosis
Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...
Last active: Jul 10, 2022
Discussion
I am newly Diagnosed with MGUS.
I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...
Last active: Feb 6 5:38am
Discussion
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
Last active: Jul 2 12:52pm
Discussion
MGUS associated with Type I Cryoglobulinemia
I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...
Last active: Jul 28 4:40pm