Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
2,417 total results
Discussion
MGUS and GLP-1’s
Hi, I was diagnosed with MGUS in 2024. I have done some research and have found that a BMI in the normal range is suggested...
Last active: Apr 11 9:52am
Discussion
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Last active: Jan 6 12:41pm
Discussion
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Last active: May 23 11:17am
Discussion
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29, 2024
Discussion
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18, 2024
Discussion
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Mar 3, 2025
Discussion
Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...
Last active: Feb 16 8:51am
Discussion
Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...
Last active: May 25 1:41pm
Discussion
Has anyone with MGUS had an iron transfusion?
Wondering if anybody with MGUS has had an iron infusion. My family doctor has ordered and my haematologist approved, but I’m wondering if anybody has...
Last active: Feb 15 10:19am
Discussion
Could we talk about anxiety with MGUS
Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...
Last active: Mar 3, 2025