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Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: Apr 25, 2025
Discussion
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Last active: Jan 6 12:41pm
Discussion
Has anyone with MGUS had an iron transfusion?
Wondering if anybody with MGUS has had an iron infusion. My family doctor has ordered and my haematologist approved, but I’m wondering if anybody has...
Last active: Feb 15 10:19am
Discussion
Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...
Last active: Feb 16 8:51am
Discussion
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29, 2024
Discussion
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18, 2024
Discussion
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Mar 3, 2025
Discussion
Could we talk about anxiety with MGUS
Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...
Last active: Mar 3, 2025
Discussion
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: Feb 10 11:34am
Discussion
Anyone have MGUS and being treated for osteoporosis?
Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks
Last active: Jun 20, 2024