Blood Cancers & Disorders Support Group

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Comment

@teriberi123, her Dr. did not approve it with Jakafi or with pacritinib.

https://connect.mayoclinic.org/comment/713038/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2022

Comment

Jakafi helped immensely with my PV side effects.

https://connect.mayoclinic.org/comment/773849/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Comment

Jakafi stopped the itching plus other symptoms for me.

https://connect.mayoclinic.org/comment/1363470/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

Comment

Always within range. Still are while I’m on Jakafi

https://connect.mayoclinic.org/comment/1023160/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Comment

Jakafi and the other medicine i don’t remember the name

https://connect.mayoclinic.org/comment/256901/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

Comment

Hi Tim, I was diagnosed with myelofibrosis (JAK-2) in October 2025. Currently waiting for a second...

https://connect.mayoclinic.org/comment/1501187/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 5:43pm

Comment

Did your Dr. approve taking quercetin with Jakafi? Thanks

https://connect.mayoclinic.org/comment/639479/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

Comment

@nisi I have been taking Jakafi (Ruxolitinib 10 mg. 2x per day) for about 6 months...

https://connect.mayoclinic.org/comment/1524013/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 1:08pm

Comment

please let us know how you do with the jakafi!!

https://connect.mayoclinic.org/comment/1007017/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

Comment

I tried all of that and nothing worked for me. Just the Jakafi

https://connect.mayoclinic.org/comment/1304992/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025