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Discussion
Could erythritol be adding to my platelet count?
I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?
Last active: Mar 2, 2023
Discussion
Has anyone been on BESREMI (Interferon)?
I was diagnosed with Essential Thrombocythemia w/JAK2 4 years ago. My platelets continue to climb and I’ve been on Eliquis and baby aspirin for over...
Last active: Aug 5 1:10pm
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Last active: May 18, 2025
Discussion
What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?
I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...
Last active: Mar 13 11:23am
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....
Last active: Apr 2 2:43pm
Discussion
Does Hydroxyurea lower testosterone levels?
I am a 72 year old male and was diagnosed with Essential Thrombocythemia three years ago. After many tries at different doses my Oncologist settled...
Last active: Jul 26, 2025
Discussion
New to Hydrea for ET
I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...
Last active: Aug 5 11:11am
Discussion
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Last active: Aug 7, 2025
Discussion
Needing help understanding ET and how it affects my life
I’m 28 and have not been formally diagnosed with Essential Thrombocythemia, but my platelet counts have been consistently high since I was at least 16...
Last active: Dec 9, 2025
Discussion
Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation
I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...
Support Group: Gynecologic Cancers
Last active: Oct 23, 2025