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Blood Cancers & Disorders Support Group

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Discussion
Does anyone else have more than one myeloproliferative disorder?
Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...
Last active: Dec 19, 2022
Discussion
Could erythritol be adding to my platelet count?
I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?
Last active: Mar 2, 2023
Discussion
Has anyone been on BESREMI (Interferon)?
I was diagnosed with Essential Thrombocythemia w/JAK2 4 years ago. My platelets continue to climb and I’ve been on Eliquis and baby aspirin for over...
Last active: Jun 1 9:23pm
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Last active: May 18, 2025
Discussion
What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?
I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...
Last active: Mar 13 11:23am
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....
Last active: Apr 2 2:43pm
Discussion
Does Hydroxyurea lower testosterone levels?
I am a 72 year old male and was diagnosed with Essential Thrombocythemia three years ago. After many tries at different doses my Oncologist settled...
Last active: Jul 26, 2025
Discussion
Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation
I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...
Support Group: Gynecologic Cancers
Last active: Oct 23, 2025
Discussion
New to Hydrea for ET
I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...
Last active: Mar 6 10:50am
Discussion
I’ve had essential thrombocythaemia for 23 years now,and thyroid issue
I’ve had this disease for 23 years now,have taken Anagrelide,hydroxides,but now I’m injecting with Peg-interferon 90mcg weekly and it’s keeping my platelets stable,over the last...
Last active: Jun 9, 2024