Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with ET and put on 500 mg a day to lower platelets from...

https://connect.mayoclinic.org/comment/1081405/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Comment

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

Hi @lorieliebrock. Welcome to Connect. You came to the right place to be embraced by other...

https://connect.mayoclinic.org/comment/1518186/

Discussion: Anyone go through duv/romi treatment before an allogenic BMT?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 2 8:51pm

Comment

@1pearl my UCLA doctor is very nice but when I selected him we did not know...

https://connect.mayoclinic.org/comment/1421368/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Comment

Hello friend! I feel your physical and emotional pain and distress ! I am in process...

https://connect.mayoclinic.org/comment/1369077/

Discussion: AML: Let's connect and share what helps stay positive

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Comment

I was diagnosed with ET with Jax 2 mutation, mild myelofibrosis, a year ago after a...

https://connect.mayoclinic.org/comment/1411546/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2025

Comment

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I was diagnosed with secondary ET myelofibrosis a few years ago after living with ET for...

https://connect.mayoclinic.org/comment/1348100/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

Hi @panamsandy , I was found to have high platelets on routine lab work after routine...

https://connect.mayoclinic.org/comment/1357204/

Discussion: Is it common for platelet level to drop?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Comment

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024