Blood Cancers & Disorders Support Group

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Comment

Hi Lori, Your perspective is very helpful. And you’re right, my jakifi and the hydrea are...

https://connect.mayoclinic.org/comment/1039833/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 25, 2024

Comment

Hi John, I am so glad to hear back from you and a big thanks to...

https://connect.mayoclinic.org/comment/999022/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I...

https://connect.mayoclinic.org/comment/997143/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

I have been on interferon..crashed my thyroid (ok now) anagrelide caused HBP (I'm on meds now),...

https://connect.mayoclinic.org/comment/941469/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

For the UTI sensation try D-Mannos ( it’s concentrated cranberry sugar) it’s OTC kinda pricey but...

https://connect.mayoclinic.org/comment/914881/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

Comment

I have ET, platelets over one-million. DR is putting me on Jakafii. Has anyone else been...

https://connect.mayoclinic.org/comment/849030/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2023

Comment

There is a lot of amazing info in this group. Kudos to many of you have...

https://connect.mayoclinic.org/comment/657917/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Comment

Hello, @spriggle (surely that can't be your name!) and thank you Colleen for asking me to...

https://connect.mayoclinic.org/comment/616952/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2021

Comment

Has anyone had an excacerbation of squamous cell cancer after using Hyderabad or jackafi?

https://connect.mayoclinic.org/comment/1443384/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2025

Comment

Hi ! I have had MF now for 4yrs I have been taken Jakfi 25 twice...

https://connect.mayoclinic.org/comment/1442785/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025