Blood Cancers & Disorders Support Group

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Comment

Hi ideachaser1, I was diagnosed with Primary MF/CALR July 2023. Although I didn't know about the...

https://connect.mayoclinic.org/comment/1243574/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

Hi sorry you havePV.I have had it for a few years and was taking hydroxyurea and...

https://connect.mayoclinic.org/comment/1236232/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Comment

I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side...

https://connect.mayoclinic.org/comment/1195446/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

My dr wants to start me on Jackafi, but I can’t afford the large co pay....

https://connect.mayoclinic.org/comment/994721/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

That is the same message I got. No treatment except aspirin unless platelets are over a...

https://connect.mayoclinic.org/comment/914130/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Comment

I have used Good Rx and highly recommend it. My experience with Aneglaride was not a...

https://connect.mayoclinic.org/comment/862219/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

Comment

Cml under control now have Jak2 2 mutation doctor put me on jakifi and on tasigna...

https://connect.mayoclinic.org/comment/194294/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Comment

I have been on jakifi 25mg 2x per day for past 5 months with no side...

https://connect.mayoclinic.org/comment/1066946/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024