Blood Cancers & Disorders Support Group

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Comment

Hi skossaz, I am so glad you are happy and doing well although your platelets are...

https://connect.mayoclinic.org/comment/1267671/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

Comment

Hello, I took serrapeptase for a while. I really had no idea if it was working...

https://connect.mayoclinic.org/comment/132666/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2020

Comment

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Comment

Hi @1pearl, I know in retrospect you’re feeling that you shouldn’t have gotten the bone marrow...

https://connect.mayoclinic.org/comment/1348033/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

You didn't indicate how high her platelet count was. Mine started at 1.4 million and in...

https://connect.mayoclinic.org/comment/1395918/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

Comment

Update. Good morning. I was diagnosed 2 1/2 years ago. At the time, both the diagnosis...

https://connect.mayoclinic.org/comment/1369631/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

Comment

I just returned from my first 6 month check up at Moffitt Cancer Center near where...

https://connect.mayoclinic.org/comment/1258442/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2025

Comment

Hello Pamdg I am very surprised that you were on JAKAFI FOR FIVE YEARS!! I was...

https://connect.mayoclinic.org/comment/1434535/

Discussion: JAKAFI anyone! I've been on it for 5 years

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Comment

Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...

https://connect.mayoclinic.org/comment/1267651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025