Blood Cancers & Disorders Support Group

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Comment

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Comment

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

Comment

I was diagnosed with myelofibrosis in 2014.comfirmed with a Jak2 DNA deviation test . Up until...

https://connect.mayoclinic.org/comment/1527906/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 11:35pm

Comment

Good morning! Well, gosh, that’s not the news you wanted with the Jakafi not doing the...

https://connect.mayoclinic.org/comment/703859/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 29, 2022

Comment

She was given Jakavi and Hydroxylurea almost from the begining.she has anemia so she takes Jakavi...

https://connect.mayoclinic.org/comment/1504701/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 9:21am

Comment

@drbart86 hi, I was diagnosed with two mutations in the bone marrow Jak2 and Calr, apparently...

https://connect.mayoclinic.org/comment/1483684/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: Jan 16 9:13am

Comment

I was diagnosed June 2025 MPL mutation with SRSF2 mutation. I’m on a clinical trial for...

https://connect.mayoclinic.org/comment/1501715/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 11:56am

Comment

My dr wants to start me on Jackafi, but I can’t afford the large co pay....

https://connect.mayoclinic.org/comment/994721/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

That is the same message I got. No treatment except aspirin unless platelets are over a...

https://connect.mayoclinic.org/comment/914130/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Comment

I have used Good Rx and highly recommend it. My experience with Aneglaride was not a...

https://connect.mayoclinic.org/comment/862219/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023