Blood Cancers & Disorders Support Group

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Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Comment

My husband was diagnosed with Polycythemia rubra vera about 12 years ago. He has done extremely...

https://connect.mayoclinic.org/comment/837851/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Comment

I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...

https://connect.mayoclinic.org/comment/798518/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Comment

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

Comment

It does appear that PV can be affected by altitude. Though one study I found has...

https://connect.mayoclinic.org/comment/737086/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

Comment

@bracha At UCIrvine, much research going on regarding JAK2/polycytemia vera at the Fleischmann Lab.

https://connect.mayoclinic.org/comment/1496932/

Discussion: PV JAK2 and evolution of treatment over time

Support Group: Blood Cancers & Disorders

Posted: Feb 3 5:36am

Comment

I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...

https://connect.mayoclinic.org/comment/1471523/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

Comment

I’ve just been diagnosed with polycythaemia Vera a blood cancer and would love to hear from...

https://connect.mayoclinic.org/comment/1434572/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Comment

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

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