Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

551 total results

Comment

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

Hi Isabelle, My name is Rayna. I was diagnosed with ET/pre fibrotic myelofibrosis (the two docs...

https://connect.mayoclinic.org/comment/870277/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other...

https://connect.mayoclinic.org/comment/1448719/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Comment

Like you, I was initially diagnosed with PV about 6 years ago. My Doctor, at the...

https://connect.mayoclinic.org/comment/1262661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2025

Comment

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Comment

Good morning Diagnosed in June 2025 with Myelofibrosis. WBC and platelets normal. Hemoglobin between 8 and...

https://connect.mayoclinic.org/comment/1412588/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2025

Comment

Good for you, it is behind you now! I was super anxious for that procedure as...

https://connect.mayoclinic.org/comment/1363654/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

Comment

I was on Anagrelide for a while as well. I starting on HU in 1992 and...

https://connect.mayoclinic.org/comment/1325199/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025