Blood Cancers & Disorders Support Group

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Comment

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...

https://connect.mayoclinic.org/comment/802874/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Comment

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...

https://connect.mayoclinic.org/comment/1250438/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:09pm

Comment

Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...

https://connect.mayoclinic.org/comment/1131840/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

Comment

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7 1:14pm

Comment

I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...

https://connect.mayoclinic.org/comment/1275379/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6 8:45am

Comment

Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...

https://connect.mayoclinic.org/comment/894079/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

Comment

What dietary changes did you make to help with myleofibrosis?

https://connect.mayoclinic.org/comment/854017/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Comment

Has anybody had any eye issues with?myelofibrosi?

https://connect.mayoclinic.org/comment/1164296/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024