Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

476 total results

Comment

Wow how brave of your husband and such incredible strength you have to be where you...

https://connect.mayoclinic.org/comment/926044/

Discussion: Living with MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Comment

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:06am

Comment

Hi - One thing I learned early on is that there is no "normal" for MDS....

https://connect.mayoclinic.org/comment/924698/

Discussion: Living with MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

Comment

I thought I would share my experience which I am grateful that my only symptoms at...

https://connect.mayoclinic.org/comment/756572/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Comment

I can get no Vaccines of any kind at this time. But will not ever get...

https://connect.mayoclinic.org/comment/808310/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

I’m happy to hear you’re being seen by an AML specialist from Mayo-Rochester. It’s my home...

https://connect.mayoclinic.org/comment/1030654/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 4:49pm

Comment

Interesting topic. I've not been posting for a while. My MF, MDS made a major turn...

https://connect.mayoclinic.org/comment/1057510/

Discussion: Taking supplements with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 26 8:24am

Comment

Hi @jelilien, I think right now your dad seems to be in good hands. Often oncologists...

https://connect.mayoclinic.org/comment/888310/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Comment

My husband has been seen by an oncology since 2017 where they had been watching his...

https://connect.mayoclinic.org/comment/940926/

Discussion: Living with MDS

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

My husband will also receive a bone marrow transplant in Feb. for MDS. We are very...

https://connect.mayoclinic.org/comment/798478/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 18, 2023