Blood Cancers & Disorders Support Group

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Comment

Hi, I found this old post, but yes, my O/H changed my diagnosis from ET on...

https://connect.mayoclinic.org/comment/1297863/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2025

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

Hello,how are you all ?❤️ Well ,my biopsy results:no evidence of granuloma or abnormal lymphoid cell...

https://connect.mayoclinic.org/comment/1049809/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Comment

Hi @mikefromridgefield. First, I’d like to say thank you for your service to our country. Unfortunately,...

https://connect.mayoclinic.org/comment/1435085/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

Comment

Hi, I saw this on the supraclavicular and finally looked it up. I have had a...

https://connect.mayoclinic.org/comment/1367865/

Discussion: What causes persistent swelling in the left supraclavicular?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Comment

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020

Comment

My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...

https://connect.mayoclinic.org/comment/1217600/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Comment

My platelet count was 1,225,000 when I was first diagnosed in Venezuela., S.A. My hematologist there...

https://connect.mayoclinic.org/comment/203950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019