Blood Cancers & Disorders Support Group

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Comment

Just following up. My Jak2 was negative and my EPO was 5. I don't know what...

https://connect.mayoclinic.org/comment/852226/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

Is a bone marrow test necessary? I was diagnosed with ET through blood tests. I'm JAK2...

https://connect.mayoclinic.org/comment/827322/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

@rivieramaya2009 I was at the Infusion Center for a phlebotomy (JAK2, PV)and the nurse asked me...

https://connect.mayoclinic.org/comment/1435935/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Comment

I have MDS/MPN with Thrombocytosis. Also JAK2 and SRSF2 positive. I take Hydroxyurea to reduce my...

https://connect.mayoclinic.org/comment/256907/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2019

Comment

I’ve seen many who get there numbers down in the 500’s and are ok with that....

https://connect.mayoclinic.org/comment/764541/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

My brother and I have the JAK2 gene sibling mutation, and he could not handle the...

https://connect.mayoclinic.org/comment/1004869/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Comment

Wondering why Xarelto? I'm in 70s diagnosed in 2019, on HU plus baby aspirin. My platelets...

https://connect.mayoclinic.org/comment/796538/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

Comment

Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few...

https://connect.mayoclinic.org/comment/985895/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

I am sorry you are going through so many issues. Since you are positive for JAK2...

https://connect.mayoclinic.org/comment/836053/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023