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1,181 total results
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Discussions (76)
Comments (1,105)
Comment
Hi, Joining in to read up on PV while waiting for my Jak2 results.. I'm 43...
https://connect.mayoclinic.org/comment/840478/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Apr 9, 2023
Comment
Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...
https://connect.mayoclinic.org/comment/284527/
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Discussion:
Jak 2 and Waldenstrom's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Dec 20, 2019
Comment
Hi - My name is Ginger - I am 77 and was recently diagnosed with ET...
https://connect.mayoclinic.org/comment/778995/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Nov 30, 2022
Comment
Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...
https://connect.mayoclinic.org/comment/718613/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jun 18, 2022
Comment
I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...
https://connect.mayoclinic.org/comment/1008041/
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Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Feb 1, 2024
Comment
@loribmt Yes, that makes total sense. I'm interested in exploring what that familial lineage is, which...
https://connect.mayoclinic.org/comment/1272673/
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Discussion:
Is Essential Thrombocythemia a blood disease or cancer?
Support Group:
Blood Cancers & Disorders
Posted: Apr 2 1:30pm
Comment
Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...
https://connect.mayoclinic.org/comment/1225257/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Jan 30 8:40am
Comment
This forum has truly been a game changer for me in my walk with ET JAK2+!...
https://connect.mayoclinic.org/comment/1235157/
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Discussion:
GI issues after 7 months on Hydroxyurea - What’s next?
Support Group:
Blood Cancers & Disorders
Posted: Feb 12 10:21am
Comment
Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t...
https://connect.mayoclinic.org/comment/1100735/
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Discussion:
Contracting/developing polycythemia vera
Support Group:
Blood Cancers & Disorders
Posted: Jul 7, 2024
Comment
Have you also been given Allopurinol to prevent gout and cramps - stops the build up...
https://connect.mayoclinic.org/comment/943396/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Oct 7, 2023
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