Blood Cancers & Disorders Support Group

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Comment

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Comment

Good morning, Wendy! I’m sitting here in front of the fireplace this morning snuggled in a...

https://connect.mayoclinic.org/comment/919632/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

I have PV with the JAK22 postive mutation. I Noticed over time that my Hemoglobin and...

https://connect.mayoclinic.org/comment/1402845/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Comment

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Comment

Ive just been diagnosed with the JK2 gene mutation a few months ago. I'm 75 ....

https://connect.mayoclinic.org/comment/836250/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Comment

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Comment

Hi @katrink I was diagnosed with PV in July 2024. I had been feeling a bit...

https://connect.mayoclinic.org/comment/1401933/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Comment

@colleenyoung @christina3444 Thank you for reaching out Colleen & Christina. I so appreciate it. Honestly, I'm...

https://connect.mayoclinic.org/comment/1464096/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Comment

@bracha At UCIrvine, much research going on regarding JAK2/polycytemia vera at the Fleischmann Lab.

https://connect.mayoclinic.org/comment/1496932/

Discussion: PV JAK2 and evolution of treatment over time

Support Group: Blood Cancers & Disorders

Posted: Feb 3 5:36am