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Comment

Hello friends! I have PV NOW PROGRESSED TO MF MYELOFIBROSIS ! Hot humid weather is brutal...

https://connect.mayoclinic.org/comment/1336577/

Discussion: Hot weather & Chemo/Treatments

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

Comment

It is a smart choice to see a specialist that has focus on Myelofibrosis. I live...

https://connect.mayoclinic.org/comment/1314992/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

Comment

Hi nohrt4me, Thanks for posting. Yes, there are concerns still with only CALR mutation too I...

https://connect.mayoclinic.org/comment/1225391/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

Comment

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

Comment

I would consider looking into Besremi as an alternative to hydroxyurea. It is injected every 2...

https://connect.mayoclinic.org/comment/1421654/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Comment

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

I was diagnosed with WM last year. My hematologist recommended Rituximab because it would also alleviate...

https://connect.mayoclinic.org/comment/1528719/

Discussion: How to prepare for after first infusion treatment for Waldenstrom?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 6:04am

Comment

Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...

https://connect.mayoclinic.org/comment/1345194/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2025

Comment

Hi @samlupowitz , I had to look up what ECD is because I never heard of...

https://connect.mayoclinic.org/comment/1504945/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 1:35pm

Comment

Doctors and diagnoses are so confusing. I to have just recently been told I have myelofibrosis...

https://connect.mayoclinic.org/comment/1364020/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025