Blood Cancers & Disorders Support Group

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Comment

Hi @wellness3070, Unfortunately, research shows that muscle weakness can be one of the side effects; however,...

https://connect.mayoclinic.org/comment/132605/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Comment

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

I, too, have Myelofibrossis. I started Ojarra 100mg 4 months ago due to spleen discomfort. That...

https://connect.mayoclinic.org/comment/1252322/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7 8:04am

Comment

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Comment

I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...

https://connect.mayoclinic.org/comment/1082842/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Comment

I worked for 40 + years in Cytogenetics. In our field chromosomes are listed as “normal”...

https://connect.mayoclinic.org/comment/1074264/

Discussion: Chromosomes positive

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Comment

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were...

https://connect.mayoclinic.org/comment/795740/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Some symptoms have included fatigue, suseptability to infections, minor bruising , anemia, and frequent pre cancer...

https://connect.mayoclinic.org/comment/50534/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Comment

I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by...

https://connect.mayoclinic.org/comment/132601/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2017