Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

447 total results

Comment

It is a numbers game. I was diagnosed with ET in 2018 - high platelets. It...

https://connect.mayoclinic.org/comment/1277142/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

Comment

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

Comment

Yes, I've perused many of the posts. It's truly inspirational to read success stories related to...

https://connect.mayoclinic.org/comment/1092115/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

Hi @mrsspiker. Let me officially welcome you to Connect, though you’ve been a member for a...

https://connect.mayoclinic.org/comment/1091801/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

Meg- I have also been told that really high platelets can cause bleeding. Fortunately HU for...

https://connect.mayoclinic.org/comment/1460586/

Discussion: Essential Thrombocytosis (ET): What are options with aspirin allergy?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

Comment

There is research looking at the connection between MPNs and inflammatory diseases like RA, gout, etc....

https://connect.mayoclinic.org/comment/1002821/

Discussion: A link between Rheumatoid Arthritis and Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Comment

I’m in the same situation as you are - I have skin GVHD on my stomach....

https://connect.mayoclinic.org/comment/926128/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 8, 2023

Comment

Thank you Lori— As much as it pains me I have read that gardening will be...

https://connect.mayoclinic.org/comment/1066077/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 11, 2024

Comment

During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...

https://connect.mayoclinic.org/comment/801488/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023