Blood Cancers & Disorders Support Group

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Comment

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Comment

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was...

https://connect.mayoclinic.org/comment/826408/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

Comment

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is...

https://connect.mayoclinic.org/comment/194370/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2020

Comment

@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...

https://connect.mayoclinic.org/comment/1023538/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Comment

Thank you for the responses. My doctor at Kaiser ordered the JAK2 test, but I freaked...

https://connect.mayoclinic.org/comment/941863/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Comment

PV allele burden (VAF) from quantitative test I have had 2 JAK2 tests, one qualitative, that...

https://connect.mayoclinic.org/comment/1147354/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

Hello, I've just found out I have the Jak2 mutation and will go for a biopsy...

https://connect.mayoclinic.org/comment/763496/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Hi, I'm jumping in because I have ET with Jak2 positive. I am on Hydrea 500mg...

https://connect.mayoclinic.org/comment/194273/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Comment

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Comment

@loribmt Yes, that makes total sense. I'm interested in exploring what that familial lineage is, which...

https://connect.mayoclinic.org/comment/1272673/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 1:30pm