Blood Cancers & Disorders Support Group

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Comment

"JAK 2 positive result only attributes to a 7% chance that it is the cause of...

https://connect.mayoclinic.org/comment/1281109/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Comment

Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...

https://connect.mayoclinic.org/comment/890629/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Comment

Is anyone having trouble with iron overload on hydrea. I have Jak2 positive pylocycthemia for a...

https://connect.mayoclinic.org/comment/1301393/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Comment

I believe that no two peoples cases are the same and as the JAK2 mutation is...

https://connect.mayoclinic.org/comment/812512/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

Comment

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Comment

I’ve seen many who get there numbers down in the 500’s and are ok with that....

https://connect.mayoclinic.org/comment/764541/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

My brother and I have the JAK2 gene sibling mutation, and he could not handle the...

https://connect.mayoclinic.org/comment/1004869/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Comment

Just following up. My Jak2 was negative and my EPO was 5. I don't know what...

https://connect.mayoclinic.org/comment/852226/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

Is a bone marrow test necessary? I was diagnosed with ET through blood tests. I'm JAK2...

https://connect.mayoclinic.org/comment/827322/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023