Blood Cancers & Disorders Support Group

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Comment

Oh Debbie I forgot to mention yes, I have tested positive for jAK2 As well as...

https://connect.mayoclinic.org/comment/974136/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

Last time my platelets were just over 700. Now I'm on 1000mg of HU daily. Hopefully...

https://connect.mayoclinic.org/comment/835015/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

Comment

Recently diagnosed with ET with JAK2& in a few months of daily HU my platelet count...

https://connect.mayoclinic.org/comment/1062393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

PV allele burden (VAF) from quantitative test I have had 2 JAK2 tests, one qualitative, that...

https://connect.mayoclinic.org/comment/1147354/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

Hello, I've just found out I have the Jak2 mutation and will go for a biopsy...

https://connect.mayoclinic.org/comment/763496/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Hi, I'm jumping in because I have ET with Jak2 positive. I am on Hydrea 500mg...

https://connect.mayoclinic.org/comment/194273/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Comment

@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...

https://connect.mayoclinic.org/comment/1023538/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Comment

Thank you for the responses. My doctor at Kaiser ordered the JAK2 test, but I freaked...

https://connect.mayoclinic.org/comment/941863/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Comment

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

Comment

Hi @shree, I know you are concerned that most of the discussions you’ve found on ET...

https://connect.mayoclinic.org/comment/1269512/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29 3:18pm