Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,472 total results

Comment

I believe that no two peoples cases are the same and as the JAK2 mutation is...

https://connect.mayoclinic.org/comment/812512/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

Comment

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Comment

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Comment

Is anyone having trouble with iron overload on hydrea. I have Jak2 positive pylocycthemia for a...

https://connect.mayoclinic.org/comment/1301393/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Comment

Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...

https://connect.mayoclinic.org/comment/890629/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Comment

"JAK 2 positive result only attributes to a 7% chance that it is the cause of...

https://connect.mayoclinic.org/comment/1281109/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025