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Comment

Wow seems like a really high dose to start. I was on HU for over 5...

https://connect.mayoclinic.org/comment/1377269/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

Comment

Thank so much for sharing It sounds like this is not easy fix for fatigue! I...

https://connect.mayoclinic.org/comment/1360256/

Discussion: Iron Infusions/Side Effects

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2025

Comment

I understand that itching too well, when I first got diagnosed with PV I went through...

https://connect.mayoclinic.org/comment/895517/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

I was screened for a clinical trial almost right away and qualified for the double blinded...

https://connect.mayoclinic.org/comment/617140/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2021

Comment

@sdcgcarroll Sadly, you will not find a comprehensive list of symptoms and side effects because they...

https://connect.mayoclinic.org/comment/1538563/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 8:36am

Comment

@drbart86 Well just went through my final screening this morning - and while my Doctor was...

https://connect.mayoclinic.org/comment/1483074/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: Jan 15 12:31pm

Comment

@janemc I had what I think was an extreme autoimmune reaction (joint / tendon pain and...

https://connect.mayoclinic.org/comment/1427163/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Comment

@gajokos I’m bad with remembering dates and timelines, but yes, I probably joined this forum fairly...

https://connect.mayoclinic.org/comment/1503486/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:06pm

Comment

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

Comment

You are absolutely right Fur ex, my onc wanted me to switch to Jakafi, very expensive,...

https://connect.mayoclinic.org/comment/1370311/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025