Blood Cancers & Disorders Support Group

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Comment

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Comment

So glad the HU worked fast for you at that low dose! Re the genetic tests,...

https://connect.mayoclinic.org/comment/1002803/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

Hi Lisa, I’m sorry you’re going through this. I know how scary it can be. I...

https://connect.mayoclinic.org/comment/1162415/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

@jackiecarey My husband is dealing with the same issues. Your information was very insightful. I have...

https://connect.mayoclinic.org/comment/1401477/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

Comment

I have taken Bcomplex since 1970 Recently my dr told me to lower the dose to...

https://connect.mayoclinic.org/comment/1031730/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

I have JAK2+ ET and I've never had side effects from Hydrea in the 30 years...

https://connect.mayoclinic.org/comment/194375/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

Comment

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I am in the same situation. I have all the symptoms but am JAK2 negative. It's...

https://connect.mayoclinic.org/comment/886516/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023