Blood Cancers & Disorders Support Group

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Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

Hi Lisa, I’m sorry you’re going through this. I know how scary it can be. I...

https://connect.mayoclinic.org/comment/1162415/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

So glad the HU worked fast for you at that low dose! Re the genetic tests,...

https://connect.mayoclinic.org/comment/1002803/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Comment

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I am in the same situation. I have all the symptoms but am JAK2 negative. It's...

https://connect.mayoclinic.org/comment/886516/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Comment

Hi group, I had a Jak2 that came back positive. From what I understand anything over...

https://connect.mayoclinic.org/comment/1140546/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2024

Comment

Hi @dale1k I am amazed at your high dose of HU since you say your RBC...

https://connect.mayoclinic.org/comment/1078783/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2024

Comment

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

Hi @jerrlin. In your case, you have the JAK2 mutation which caused the PV so it’s...

https://connect.mayoclinic.org/comment/870946/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023