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1,179 total results
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Discussions (75)
Comments (1,104)
Comment
I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...
https://connect.mayoclinic.org/comment/786781/
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Discussion:
High Platelets
Support Group:
Blood Cancers & Disorders
Posted: Dec 19, 2022
Comment
I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...
https://connect.mayoclinic.org/comment/645538/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Oct 15, 2021
Comment
Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...
https://connect.mayoclinic.org/comment/1137758/
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Discussion:
Polycythemia vera (PV) and bone pain: What helps?
Support Group:
Blood Cancers & Disorders
Posted: Sep 7, 2024
Comment
I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...
https://connect.mayoclinic.org/comment/801452/
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Discussion:
Jak2 and Vitamin D3
Support Group:
Blood Cancers & Disorders
Posted: Jan 25, 2023
Comment
Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...
https://connect.mayoclinic.org/comment/194342/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Sep 16, 2019
Comment
Hi, I am in the USA and no bone marrow biopsy was done on me to...
https://connect.mayoclinic.org/comment/1216299/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Jan 19 9:21am
Comment
Hello everyone, I am recently diagnosed with ET and the Jak2 mutation. Cubby 13, I feel...
https://connect.mayoclinic.org/comment/1293524/
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Discussion:
Started Hydroxyurea 5 weeks . How long does the fatigue last?
Support Group:
Blood Cancers & Disorders
Posted: Apr 30 12:12pm
Comment
Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...
https://connect.mayoclinic.org/comment/887366/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 29, 2023
Comment
I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...
https://connect.mayoclinic.org/comment/828776/
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Discussion:
Hydroxyurea side effects lessen over time?
Support Group:
Blood Cancers & Disorders
Posted: Mar 20, 2023
Comment
yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...
https://connect.mayoclinic.org/comment/798768/
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Discussion:
Essential Thrombocythemia (ET) and viruses
Support Group:
Blood Cancers & Disorders
Posted: Jan 19, 2023
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