Blood Cancers & Disorders Support Group

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Comment

There is so much info on the internet that it will be exhausting to sort through...

https://connect.mayoclinic.org/comment/1369812/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

Comment

Hi @doreen78 and welcome to Connect. I think I’m as confused as you are about your...

https://connect.mayoclinic.org/comment/1291816/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

Comment

Everyone, I want to start by saying thank you all. I have been in Connect for...

https://connect.mayoclinic.org/comment/1549655/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: 3 days ago

Comment

Hi @nisi Welcome to Mayo Connect. I’m so sorry to see that there’s been a change...

https://connect.mayoclinic.org/comment/1523951/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 11:45am

Comment

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Comment

Hi, I’ve lived a relatively good life after being diagnosed with ET at 20 and I’m...

https://connect.mayoclinic.org/comment/958246/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Comment

Interesting you mention this. Yes yes and yes. With it radiating to my knee conceded me...

https://connect.mayoclinic.org/comment/1341397/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2025

Comment

Lori, I wanted to update you on my husbands progress of his myelofibrosis. He finished his...

https://connect.mayoclinic.org/comment/1300132/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 8, 2025

Comment

Hi, I think it is a good idea to have a Bone Marrow Biopsy before treatment...

https://connect.mayoclinic.org/comment/1270976/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2025

Comment

2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration...

https://connect.mayoclinic.org/comment/1509609/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 19 10:30am