Blood Cancers & Disorders Support Group

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Comment

Hello--I am new to this, so not sure about how everything works; if I'm getting it...

https://connect.mayoclinic.org/comment/829666/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Comment

Please get the bone marrow biopsy you need those answers. My husband has had at least...

https://connect.mayoclinic.org/comment/1003201/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Comment

Hi @fortuitous, There’s another member in Connect (@sherbs)with the same DDX41 mutation only with MDS, not...

https://connect.mayoclinic.org/comment/1188086/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2024

Comment

Hello @momz @nbadry @rrivory @honeymae. I know that you’ve all been diagnosed with a blood condition...

https://connect.mayoclinic.org/comment/925760/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Comment

I have MDS and am anemic. I recently had an iron infusion as my doc thinks...

https://connect.mayoclinic.org/comment/1000790/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

Comment

Are your other blood numbers down too? A drop in the white blood counts would allow...

https://connect.mayoclinic.org/comment/856514/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

I have low platelets. My “normal” is around 68,000. I was diagnosed with ITP. It’s an...

https://connect.mayoclinic.org/comment/1025699/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

Comment

Hi @katanaguy, You’ve been through the wringer the past couple of months! With your very low...

https://connect.mayoclinic.org/comment/1177377/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Comment

Hi Brenda, I was very interested in your comments about your husband’s response to your MDS....

https://connect.mayoclinic.org/comment/961219/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Comment

Thanks for sharing the positive experience. Can I ask what Mayo campus is he being treated...

https://connect.mayoclinic.org/comment/1180667/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024