Blood Cancers & Disorders Support Group

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Comment

@nypara66 My hematologist is a young and very engaged man who I have great respect for...

https://connect.mayoclinic.org/comment/1422173/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Comment

Good morning, @tim376. You were very recently diagnosed with myelofibrosis, (MF) so I’m sure you have...

https://connect.mayoclinic.org/comment/1502334/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 9:17am

Comment

I was on hydrea for a short time as I did not tolerate it well and...

https://connect.mayoclinic.org/comment/1011633/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Comment

No, they didn't have the same diagnostics then. Dad had ET for about 20 years (he...

https://connect.mayoclinic.org/comment/890886/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

Comment

It’s unbelievably frustrating when our life takes such an abrupt turn for no reason…not that having...

https://connect.mayoclinic.org/comment/879788/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Phlebotomies did not bother me, but they had trouble getting a full pint, no matter how...

https://connect.mayoclinic.org/comment/1237521/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2025

Comment

How exciting to be tapering off! Enjoy your freedom and strong immune system! I was on...

https://connect.mayoclinic.org/comment/633130/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 6, 2021

Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...

https://connect.mayoclinic.org/comment/1127238/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

Comment

I've been on Jakafi since December 2022 and the only thing I experienced initially was an...

https://connect.mayoclinic.org/comment/908466/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023