Blood Cancers & Disorders Support Group

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Comment

I have polycythemia as well. I discovered that my terrible itch and hives lasting about 30-minutes...

https://connect.mayoclinic.org/comment/985516/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

Comment

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

Comment

I've been on Jakafi since December 2022 and the only thing I experienced initially was an...

https://connect.mayoclinic.org/comment/908466/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Comment

I walk about 2 miles a day, not all at once though because it hurts too...

https://connect.mayoclinic.org/comment/843128/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Comment

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

I itch on my left arm all the time it drives me crazy NO creams etc...

https://connect.mayoclinic.org/comment/820106/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

Comment

MY LV started in Jan 2019 and I know many of you have been dealing with...

https://connect.mayoclinic.org/comment/52586/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Comment

Yes, but I itch random times of the day. It’s really frustrating. I find antihistamines help...

https://connect.mayoclinic.org/comment/1088958/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024