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Discussion
Is it safe to have a tattoo if you have Polycythemia Vera?
Newly diagnosed and am considering getting another tattoo but concerned about whether tattooing is problematic
Last active: Apr 29, 2023
Discussion
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?
Last active: Aug 20, 2024
Discussion
Polycythemia vera (PV) and bone pain: What helps?
My bone pain with PV is becoming worse. Has anyone found anything that helps.
Last active: Sep 7, 2024
Discussion
Has anyone experienced neuropathy with polycythemia vera (PV)?
Has anyone been experiencing Nueropathy with PV? The tops of my hands and feet/ shins are burning. I’m having tingling in my face also. I...
Last active: Jun 17, 2024
Discussion
Polycythemia Vera: What is next when treatment stops working?
Hello everyone,i apologize for my English, we are located in GreeceMy mother was dignosed with PV two years ago.it seems that now the cancer is...
Last active: Feb 14 11:00am
Discussion
What might this be? polycythemia vera, PCOS, lupus, something else?
Polycythemia with all negative results????????I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I will...
Last active: Dec 18, 2024
Discussion
Triple-Negative Polycythemia Vera with MF-1 – Looking for Similar Case
Hello everyone, I would like to share my case and connect with anyone who may have a similar diagnosis or experience. I am a 33-year-old...
Last active: Jun 3 8:54am
Discussion
Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?
Diagnosed with PV two years ago at age 69. Until this diagnosis I had been very healthy my whole life. Never took medication except for...
Last active: Oct 19, 2025