Blood Cancers & Disorders Support Group

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...

Has anyone been experiencing Nueropathy with PV? The tops of my hands and feet/ shins are burning. I’m having tingling in my face also. I...

My bone pain with PV is becoming worse. Has anyone found anything that helps.

When is hydroxurea usually added to treatment for Polycemia Vera? I am currently on low dose aspirin

Diagnosed with PV two years ago at age 69. Until this diagnosis I had been very healthy my whole life. Never took medication except for...

Is there anything I can do for fatigue on a home basis? Diets, iron, anything? I’m low on ferritin, my count was 49.9% so they...

There is a drug called rusfertide in stage 3 research. It is showing great promise in managing hemtocrit thereby avoiding phlebotomies. What other info does...

I am being treated with Hydroxyurea. The least bit of exercise results in pain on right side of chest and back, along with extreme shortness...

Hello, am I crazy? I'm a 23-year-old biological female with a complex medical history. I'm going to list my pre-existing conditions, before I started hematological...