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Discussion
Is it safe to have a tattoo if you have Polycythemia Vera?
https://connect.mayoclinic.org/discussion/tattoos-and-pv/
Newly diagnosed and am considering getting another tattoo but concerned about whether tattooing is problematic
Support Group: Blood Cancers & Disorders
Last active: Apr 29, 2023
Discussion
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
https://connect.mayoclinic.org/discussion/polycemia-vera/
What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?
Support Group: Blood Cancers & Disorders
Last active: Aug 20, 2024
Discussion
Polycythemia Vera: What is next when treatment stops working?
https://connect.mayoclinic.org/discussion/hello-everyonei-apologize-for-my-english-we-are-located-in-greece/
Hello everyone,i apologize for my English, we are located in GreeceMy mother was dignosed with PV two years ago.it seems that now the cancer is...
Support Group: Blood Cancers & Disorders
Last active: Feb 14 11:00am
Discussion
What might this be? polycythemia vera, PCOS, lupus, something else?
https://connect.mayoclinic.org/discussion/is-this-polycythemia-vera/
Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...
Support Group: Blood Cancers & Disorders
Last active: Dec 18, 2024
Discussion
Polycythemia vera (PV) and bone pain: What helps?
https://connect.mayoclinic.org/discussion/pv-and-bone-pain/
My bone pain with PV is becoming worse. Has anyone found anything that helps.
Support Group: Blood Cancers & Disorders
Last active: Sep 7, 2024
Discussion
Has anyone experienced neuropathy with polycythemia vera (PV)?
https://connect.mayoclinic.org/discussion/has-anyone-experienced-neuropathy-with-pv/
Has anyone been experiencing Nueropathy with PV? The tops of my hands and feet/ shins are burning. I’m having tingling in my face also. I...
Support Group: Blood Cancers & Disorders
Last active: Jun 17, 2024
Discussion
Polycythemia vera (Jak negative): What to do when ferritin low?
https://connect.mayoclinic.org/discussion/what-to-do-if-ferritin-goes-to-11ng-in-jak-neg-polycythemia-vera-after/
I am 59 yrs old male with jak neg polycythemia vera managing with only phlebotomy every 4 to 5 months in last 5 yrs now...
Support Group: Blood Cancers & Disorders
Last active: Feb 19 7:28am
Discussion
Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?
https://connect.mayoclinic.org/discussion/anyone-else-taking-hydroxyurea-plus-gabapentin-for-polycythemia-vera/
Diagnosed with PV two years ago at age 69. Until this diagnosis I had been very healthy my whole life. Never took medication except for...
Support Group: Blood Cancers & Disorders
Last active: Oct 19, 2025
Discussion
When is hydroxurea usually added to treat polycythemia vera (PV)?
https://connect.mayoclinic.org/discussion/hydroxurea/
When is hydroxurea usually added to treatment for Polycemia Vera? I am currently on low dose aspirin
Support Group: Blood Cancers & Disorders
Last active: Aug 17, 2022