Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...

https://connect.mayoclinic.org/comment/132598/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Comment

Wow! Good luck. I’m the opposite - my platelet count was 1.1 million. Essential Thrombocytosis. After...

https://connect.mayoclinic.org/comment/964574/

Discussion: Aplastic Anemia and dealing with low Platelet counts

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2023

Comment

It sounds like you mean Essential Thrombocytosis, often referred to on this form as ET. It...

https://connect.mayoclinic.org/comment/1066397/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Comment

Hello. My mom has essential thrombocytosis & her hematoligist said the platlets may fluctuate, even on...

https://connect.mayoclinic.org/comment/1324616/

Discussion: Have your platelets gone up?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Comment

Pretty much what debhammel said. 70 yrs, have had essential thrombocytosis x 15 years, on hydroxyurea...

https://connect.mayoclinic.org/comment/1066788/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Comment

Hi Julieanna57, I am curious whether you are taking anything other than aspirin. Your platelets seem...

https://connect.mayoclinic.org/comment/808572/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2023

Comment

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

Comment

Good morning all.....to anyone having a rash and scalp itchiness I have Essential Thrombocytosis which causes...

https://connect.mayoclinic.org/comment/744043/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Comment

I've also been in 1000mg, for ten years. Just turned 70, quite active, playing doubles tennis...

https://connect.mayoclinic.org/comment/1178317/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2024

Comment

Here's a link to the About Page for the Got Essential Thrombocytosis? website: http://ethrombo.blogspot.com/2015/10/about-et.html. Like a...

https://connect.mayoclinic.org/comment/882887/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

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