Aplastic Anemia and dealing with low Platelet counts
I was diagnosed with Aplastc Anymia about a year ago due to having a platelet count of 3(thousand). Spent December of 2022 in John’s Hopkins in Baltimore. Dr George Sotos in Rockville MD is my Oncologist/Hemotologist. He along with Dr Amy DeZern of John’s Hopkins are treating me. Was not thrilled to spen a month in John’s Hopkins, 3 days in ICU, but with both Doctors and family support, I am getting thru it. As of my appointment with Dr Sotos today, I’m not at 54.4 for platelets. Dr DeZern says that it takes upwards of 18 months to get back to a somewhat normal count of around 150 (thousand). I’ve had to get 2 bone marrow tests done which entails a doctor going into your lower back and taking a sample of my bone marrow. I was awake during both procedures and the worse part of it was that I could feel the doctor ponding and scraping in my bone to get a sample. I only had to do this twice cuz the doctor at Adventist hospital at Shady Grove (Maryland) didn’t get a good sample the first time. Not a horrible experience but not a good one either. I’m getting better. What a journey.