Blood Cancers & Disorders Support Group

Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...

Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...

I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...

Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...