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Blood Cancers & Disorders Support Group

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1,203 total results
Discussion
Thrombocythemia JAK2 - is it ok to have an MRI with dye?
Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...
Last active: Aug 15, 2024
Discussion
Prescribed Aspirin for ET with Jak2 mutation and have GERD
I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...
Last active: Oct 15, 2024
Discussion
Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?
I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....
Last active: Aug 26 2:02pm
Discussion
JAK2 Mutation, Low Iron and High Platelet count
I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...
Last active: May 24, 2021
Discussion
JAK2 Mutation and enlarged spleen: What might it mean?
Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...
Last active: Nov 3, 2024
Discussion
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Last active: Mar 19, 2024
Discussion
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
Last active: Jul 17, 2023
Discussion
High platelets, Jak2, ET, and pre-fib new diagnosis
Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...
Last active: Apr 5, 2024
Discussion
Has anyone had a total knee replacement that also has JAK2?
I was diagnosed with JAK 2 about two year ago - platelet count was around 750,000. I have been taking hydroxyrurea (500mg) daily and have...
Last active: Jan 1 2:08pm
Discussion
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Last active: Sep 29, 2024