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Blood Cancers & Disorders Support Group

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986 total results
Discussion
Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?
I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....
Last active: Nov 16 2:57pm
Discussion
JAK2 Mutation and enlarged spleen: What might it mean?
Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...
Last active: Nov 3 6:14pm
Discussion
JAK2 Mutation, Low Iron and High Platelet count
I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...
Last active: May 24, 2021
Discussion
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
Last active: Jul 17, 2023
Discussion
High platelets, Jak2, ET, and pre-fib new diagnosis
Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...
Last active: Apr 5 1:49pm
Discussion
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Last active: Mar 19 11:33am
Discussion
I have JAK2 ET and MPN: Anyone else have these symptoms?
Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...
Last active: Jun 19 5:40am
Discussion
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Last active: Sep 29 9:06am
Discussion
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...
Last active: Sep 17 8:37am
Discussion
Jak 2 Positive with Elevated Platelets: What symptoms do you have?
42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...
Last active: May 10, 2023