Blood Cancers & Disorders Support Group

Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...

Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...

Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...

I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of...

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...

Hello. Has anyone with JAK2/PV who’s on 1000mg HU and Low Dose Aspirin daily, had an epidural or back surgery? What was your experience and...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...

I have been on Hydroxyurea for 1 1/2. I’m on 500 once a day. My platelets are tracking at 405k. I am borderline anemia. But...

Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...