Blood Cancers & Disorders Support Group

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Comment

Shari715 Good to hear your ctcl is undee control. I, too have stage 1 MF. Treated...

https://connect.mayoclinic.org/comment/918052/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

I have a slightly different cell type of CTCL. Also most people at diagnosis are not...

https://connect.mayoclinic.org/comment/958876/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Comment

Welcome to Connect @charlenekeogh. You found the right discussion group with members who also CTCL such...

https://connect.mayoclinic.org/comment/953221/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Comment

I am not having electrophoresis. Other people may have this treatment. I know there’s chemo oral...

https://connect.mayoclinic.org/comment/1164882/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

Comment

Hi @shufie, Welcome to Mayo Connect. I’m so happy you found this discussion since your son...

https://connect.mayoclinic.org/comment/1545554/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 9:36am

Comment

Hi all My 33 yr old son was diagnosed in July with CTCL/MF. He had "eczema"...

https://connect.mayoclinic.org/comment/953179/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Comment

My husband has CTCL, diagnosed about 5 years ago. Entered a drug trial at UAMS and...

https://connect.mayoclinic.org/comment/920086/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2023

Comment

I am so fortunate with my Mycosis fungoides which I call CTCL, as I was diagnosed...

https://connect.mayoclinic.org/comment/943799/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

In mid-2022 I noticed 3-4 small dime to quarter size white patches developing on my thigh....

https://connect.mayoclinic.org/comment/1095417/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Comment

So sorry to hear about your condition. I too suffer with eczema from birth and after...

https://connect.mayoclinic.org/comment/161949/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2019

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